| [GMCnet] Update on Helen [message #289499] |
Tue, 27 October 2015 08:06  |
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USAussie
Messages: 15912
Registered: July 2007
Location: Sydney, Australia
Karma: 6
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Senior Member |
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G'day,
We met with Oncologist today to review the CT scans taken last week.
Helen has cancer in multiple locations.
1) lungs
2) spine / ribs
3) adrenal glands
When comparing the CT scan taken last week to the CT scan taken in June:
1) the cancer in lungs has shrunk
2) the cancer in the spine / ribs has grown
3) the cancer in the adrenal glands is the same, however, it has no major effect overall
When comparing the CT scan taken last week to the CT scan taken in September:
1) there was no change in the cancer in the lungs
2) the cancer in the spine / ribs grown marginally
3) the cancer in the adrenal glands is the same
Helen is scheduled for a biopsy to check for mutations that would respond to an immunotherapy clinical trial that shows promise. If
her cancer has the mutations she has the following options:
1) participate in the clinical immunotherapy clinical trial
2) go through another round of chemo therapy
3) go for palliative care (no treatment other than pain killers)
If the mutations are not present then there's only options 2) or 3).
She's not in pain so at least the drugs are working. The latest problem is bouts of nausea.
Regards,
Rob M.
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Regards,
Rob M. (USAussie)
The Pedantic Mechanic
Sydney, Australia
'75 Avion - AUS - The Blue Streak TZE365V100428
'75 Avion - USA - Double Trouble TZE365V100426
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| Re: [GMCnet] Update on Helen [message #289501 is a reply to message #289499] |
Tue, 27 October 2015 08:31  |
JohnL455
Messages: 4447
Registered: October 2006
Location: Woodstock, IL
Karma: 12
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Senior Member |
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Thanks for the update Rob. It's good to have someone caring for her who can sort all the data and options as well as you do. Give her our best.
John Lebetski
Woodstock, IL
77 Eleganza II
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| Re: [GMCnet] Update on Helen [message #289509 is a reply to message #289499] |
Tue, 27 October 2015 10:23 |
George Beckman
Messages: 1085
Registered: October 2008
Location: Colfax, CA
Karma: 11
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Senior Member |
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USAussie wrote on Tue, 27 October 2015 06:06G'day,
She's not in pain so at least the drugs are working. The latest problem is bouts of nausea.
Regards,
Rob M.
Helen remains on my morning prayer list.
'74 Eleganza, SE, Howell + EBL
Best Wishes,
George
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| Re: [GMCnet] Update on Helen [message #289537 is a reply to message #289499] |
Tue, 27 October 2015 14:11 |
Dolph Santorine
Messages: 1236
Registered: April 2011
Location: Wheeling, WV
Karma: -41
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Senior Member |
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Thoughts and prayers, Helen and Rob.
Dolph & Lora Kaye
> On Oct 27, 2015, at 9:06 AM, Robert Mueller wrote:
>
> G'day,
>
> We met with Oncologist today to review the CT scans taken last week.
>
> Helen has cancer in multiple locations.
>
> 1) lungs
> 2) spine / ribs
> 3) adrenal glands
>
> When comparing the CT scan taken last week to the CT scan taken in June:
>
> 1) the cancer in lungs has shrunk
> 2) the cancer in the spine / ribs has grown
> 3) the cancer in the adrenal glands is the same, however, it has no major effect overall
>
> When comparing the CT scan taken last week to the CT scan taken in September:
>
> 1) there was no change in the cancer in the lungs
> 2) the cancer in the spine / ribs grown marginally
> 3) the cancer in the adrenal glands is the same
>
> Helen is scheduled for a biopsy to check for mutations that would respond to an immunotherapy clinical trial that shows promise. If
> her cancer has the mutations she has the following options:
>
> 1) participate in the clinical immunotherapy clinical trial
> 2) go through another round of chemo therapy
> 3) go for palliative care (no treatment other than pain killers)
>
> If the mutations are not present then there's only options 2) or 3).
>
> She's not in pain so at least the drugs are working. The latest problem is bouts of nausea.
>
> Regards,
> Rob M.
>
>
>
> _______________________________________________
> GMCnet mailing list
> Unsubscribe or Change List Options:
> http://list.gmcnet.org/mailman/listinfo/gmclist_list.gmcnet.org
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| Re: [GMCnet] Update on Helen [message #289557 is a reply to message #289546] |
Tue, 27 October 2015 20:06 |
stick miller
Messages: 1036
Registered: March 2010
Location: Americus, Georgia
Karma: 0
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Senior Member |
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Helen and Rob. Sending love and prayers.
Stick & Elise Miller
Stick Miller
'78 Royale - "White Trash" - she left me for another man
'76 Eleganza - "Cousin Eddie" Sold
'84 Bluebird Wanderlodge - "Past Tents"
Americus, GA
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| Re: [GMCnet] Update on Helen [message #289621 is a reply to message #289499] |
Wed, 28 October 2015 20:55 |
cbryan
Messages: 451
Registered: May 2012
Location: Ennis, Texas
Karma: 3
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Senior Member |
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Rob and Helen,
Qilan and I are praying for you both, and her doctors.
Carey
Carey from Ennis, Texas
78 Royale, 500 Cadillac, Rance Baxter EFI.
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| Re: [GMCnet] Update on Helen [message #290152 is a reply to message #290143] |
Mon, 09 November 2015 13:42 |
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USAussie
Messages: 15912
Registered: July 2007
Location: Sydney, Australia
Karma: 6
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Senior Member |
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Bob,
Thanks! I'll talk to Helen about getting some Reglan today.
Helen found out about the anti - nausea effects of ginger and here in Sydney I've bought her Kirk's Ginger Beer and Schweppes Ginger
Ale.
There is a company in Melbourne called USA Foods and I found they sold Canada Dry Ginger Ale, and White Rock Ginger Ale so a bought
one of each of those too so she can select the one that works the best.
By the way there's a discussion about tires on the GMCnet and the costs to repair the wheel well after a blowout, do you happen to
have any photos of the damage to your GMC and the cost to fix it that you could send me?
Regards,
Rob M.
The Pedantic Mechanic
-----Original Message-----
From: Gmclist [mailto:gmclist-bounces@list.gmcnet.org] On Behalf Of Bob Lee
Sent: Tuesday, November 10, 2015 4:57 AM
To: gmclist@list.gmcnet.org
Subject: Re: [GMCnet] Update on Helen
Rob, Helen,
Nausea is the worst part of the trip. Ask me how I know. Try ginger root powder.
Try Reglan.
You are both in our prayers.
Bob and Grace Lee
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Regards,
Rob M. (USAussie)
The Pedantic Mechanic
Sydney, Australia
'75 Avion - AUS - The Blue Streak TZE365V100428
'75 Avion - USA - Double Trouble TZE365V100426
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| Re: [GMCnet] Update on Helen [message #290155 is a reply to message #290152] |
Mon, 09 November 2015 13:53 |
k2gkk
Messages: 4452
Registered: November 2009
Karma: -8
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Senior Member |
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"Ginger Snap" cookies have long been a home remedy for motion sickness nausea. I'll bet Matt Colie know about that! Swedish Pepparkakar cookies MIGHT be available in Oz.
My Mom used ginger ale to treat us kids when our stomachs were upset. "Cliquot Club" (Canadian) was her favored brand.
~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~
~~ ~ D C "Mac" Macdonald ~ ~~
~ ~ Amateur Radio - K2GKK ~ ~
~ ~ Since 30 November '53 ~ ~
~ ~ USAF and FAA, Retired ~ ~
~ Member GMCMI and Classics ~
~ ~ ~ Oklahoma City, OK ~ ~ ~
~~ ~ ~ "The Money Pit" ~ ~ ~~
~ ~ ~ ~ TZE166V101966 ~ ~ ~ ~
~ ~ ~ '76 ex-Palm Beach ~ ~ ~
~~ k2gkk + hotmail dot com ~~
~ www.gmcmhphotos.com/okclb ~
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______________
|[ ]~~~[][ ][]\
"--OO--[]---O-"
> From: robmueller@iinet.net.au
> To: gmclist@list.gmcnet.org
> Date: Tue, 10 Nov 2015 06:42:48 +1100
> Subject: Re: [GMCnet] Update on Helen
>
> Bob,
>
> Thanks! I'll talk to Helen about getting some Reglan today.
>
> Helen found out about the anti - nausea effects of ginger and here in Sydney I've bought her Kirk's Ginger Beer and Schweppes Ginger
> Ale.
>
> There is a company in Melbourne called USA Foods and I found they sold Canada Dry Ginger Ale, and White Rock Ginger Ale so a bought
> one of each of those too so she can select the one that works the best.
>
> By the way there's a discussion about tires on the GMCnet and the costs to repair the wheel well after a blowout, do you happen to
> have any photos of the damage to your GMC and the cost to fix it that you could send me?
>
> Regards,
> Rob M.
> The Pedantic Mechanic
>
> -----Original Message-----
> From: Gmclist [mailto:gmclist-bounces@list.gmcnet.org] On Behalf Of Bob Lee
> Sent: Tuesday, November 10, 2015 4:57 AM
> To: gmclist@list.gmcnet.org
> Subject: Re: [GMCnet] Update on Helen
>
> Rob, Helen,
> Nausea is the worst part of the trip. Ask me how I know. Try ginger root powder.
> Try Reglan.
> You are both in our prayers.
>
> Bob and Grace Lee
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| Re: [GMCnet] Update on Helen [message #290163 is a reply to message #290156] |
Mon, 09 November 2015 15:47 |
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USAussie
Messages: 15912
Registered: July 2007
Location: Sydney, Australia
Karma: 6
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Senior Member |
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Karen,
Helen has a prescription for anti-nausea tablets (Maxolon), she just wanted to try ginger ale and as her caregiver I wanted her to
provide her with every choice available.
Regards,
Rob M.
The Pedantic Mechanic
-----Original Message-----
From: KB
Reglan is for GERD, so I'm not sure how that would help (though it does
empty the stomach faster). Ondansetron works very well for nausea and is on the
world health organization list of essential medicines. I prefer the orally
dissolving (ODT) version, and apparently so do the insurance companies as
the non ODT ones seem to have really limited prescriptions.
I'm a little surprised her doctor didn't prescribe something for it, but what do I know.
Karen
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Regards,
Rob M. (USAussie)
The Pedantic Mechanic
Sydney, Australia
'75 Avion - AUS - The Blue Streak TZE365V100428
'75 Avion - USA - Double Trouble TZE365V100426
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| Re: [GMCnet] Update on Helen [message #290169 is a reply to message #290165] |
Mon, 09 November 2015 17:14 |
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USAussie
Messages: 15912
Registered: July 2007
Location: Sydney, Australia
Karma: 6
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Senior Member |
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Karen,
Thanks for the compliment; being pedantic extends to everything I do!
Regards,
Rob M.
The Pedantic Mechanic
-----Original Message-----
From: Gmclist [mailto:gmclist-bounces@list.gmcnet.org] On Behalf Of KB
Sent: Tuesday, November 10, 2015 9:36 AM
To: gmclist@list.gmcnet.org
Subject: Re: [GMCnet] Update on Helen
ahhh, got it. In that case, candied ginger is good stuff to to add to the list.
Best of luck to Helen on her recovery. She's in good hands.
Karen
1975 26'
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Regards,
Rob M. (USAussie)
The Pedantic Mechanic
Sydney, Australia
'75 Avion - AUS - The Blue Streak TZE365V100428
'75 Avion - USA - Double Trouble TZE365V100426
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